Tonight's blog will be short, as I am exhausted to the core. Last night Lenny was up every 20 minutes to half hour. Hot, cold, thirsty, had to pee, just plain old uncomfortable. I have a hard time sleeping to begin with because I am afraid I will miss him calling my name for something. This will get easier, it is all just so new to him of course.
This morning he woke to have breakfast and then speech therapy which is when they do a bunch of brain questions to make sure he is ok. He hates it, but I explained to him it is just part of the deal to get better. After speech therapy we learned that they were coming in to change out his trach to the smaller one. Well good news, once they got in there they felt that HE DIDN"T NEED THE TRACH ANYMORE AT ALL. We were so happy. So they removed the trach, cleaned it up, and put a piece of gauze with tape over it. He has to put his hand on it and push in when he is talking and coughing, but he is so much more comfortable.
After the trach was removed it was time for all his medicine and immediately following that was lunch. He was getting so tired he barely ate his lunch. Finally he stopped fighting it and went to sleep forgoing the rest of his lunch. He slept so good I could not believe it. The nurse came in at 12:30 cause he had PT at 1pm, I told her how tired he was and they decided to skip the other two therapies today. He slept good and woke up a few times for the typical things, but for the most part was right back to sleep after he got what he needed. He woke up about 3 and we just talked until some friends came over to bring us dinner which was so nice (thank you again Kym & George).
Lenny watched the Laker Game of course and was glad to see them win. Tonight was the first game where he had his Laker Gnome watching the game with him which he liked.
So here we are at the end of the night and my eyes are burning as I stare at the screen. Here's to hoping we both get a good nights sleep.
Love, Lenny and Nancy